SPINA BIFIDA-REHAB

SUMMARY

1. Care coordination: Spina Bifida Adult Resource Team (SBART) in NSW. Especially critical for patients with hydrocephalus.

2. Planned transitional care: from children to adults.

3. Encourage self management & physical activity.

4. Annual renal tract US, screen for chronic diseases (HTN, DM, hyperlipidemia).

5. Periodic review: BP monitoring, weight, shunt, sleep apnoea, pain, bowel/bladder, skin integrity, lymphedema, equipment needs.

6. Family planning: females don't have issues but males may have dysfunctional sperm.

7. Neuropsychology assessment: many lack insight due to executive dysfunction, behavioral problems.

Reference(s)

Cifu, D.X. (2020). Braddom’s physical medicine and rehabilitation. Elsevier. Get it on Amazon.
Cuccurullo, S. (2019). Physical medicine and rehabilitation board review. New York: Demosmedical. Get it on Amazon.
O’Young, B., Young, M.A. and Stiens, S.A. (2008). Physical Medicine and Rehabilitation Secrets. Mosby. Get it on Amazon.